30 THINGS ABOUT MY INVISIBLE ILLNESS YOU MAY NOT KNOW
1. The illness I live with is: Systemic Lupus Erythematosis, Sjogren’s syndrome and autoimmune hypothyroidism
2. I was diagnosed with it in the year: 1992
3. But I had symptoms since: I was 9 years old
4. The biggest adjustment I’ve had to make is: avoiding UVA/UVB rays
5. Most people assume: I’m NOT sick because I don’t often look ill
6. The hardest part about mornings are: joint pain
7. My favorite medical TV show is: Mystery Diagnosis!
8. A gadget I couldn’t live without is: sunscreen lotion!
9. The hardest part about nights are: joint pain.
10. Each day I take __ pills & vitamins. (No comments, please) 14
11. Regarding alternative treatments I: wish I could afford acupuncture (because I haven’t tried it) and craniosacral therapy (because it really helps)
12. If I had to choose between an invisible illness or visible I would choose: NEITHER!
13. Regarding working and career: I used to work full time but am now on disability
14. People would be surprised to know: how much sleep I require
15. The hardest thing to accept about my new reality has been: realizing that I can’t work full time, even if I want to.
16. Something I never thought I could do with my illness that I did was: travel.
17. The commercials about my illness: really don’t tell the whole story.
18. Something I really miss doing since I was diagnosed is: basking in the warm sun.
19. It was really hard to have to give up: being outdoors on a regular basis.
20. A new hobby I have taken up since my diagnosis is: designing and creating jewelry.
21. If I could have one day of feeling normal again I would: spend the day outside at a park.
22. My illness has taught me: patience.
23. Want to know a secret? One thing people say that gets under my skin is: ”Have you every tried …..?”
24. But I love it when people: tell me they keep me in their prayers. It really helps.
25. My favorite motto, scripture, quote that gets me through tough times is: When God closes a door, he opens a window.
26. When someone is diagnosed I’d like to tell them: you are not alone.
27. Something that has surprised me about living with an illness is: the isolation of living with a disease none of my friends have.
28. The nicest thing someone did for me when I wasn’t feeling well was: give me a hug.
29. I’m involved with Invisible Illness Week because: I have lupus.
30. The fact that you read this list makes me feel: I’m not alone.