My name is Sue and I live in Webster Groves, Missouri. I was diagnosed with systemic lupus (SLE) in 1992. I also have subacute cutaneous lupus (SCLE). Autoimmune disorders are frustrating and vexing. If you have one (or more) you understand what it’s like. If you don’t and decide to read this blog on a regular basis, you’ll eventually learn something. I’m not sure exactly what but hey, this is a blog after all.
I consider myself lucky. I have a full-time job, health insurance, an understanding employer, supportive family and friends, an amazing son. I created this blog to write about life, friends, family, lupus and an array of stuff.
Here’s a photo of my son (my only child) and daughter-in-law (who is simply amazing and wonderful). Matt and Laura were married the day after they graduated from Northland College in Ashland, Wisconsin. They were married by the head of the Philosophy Department at school, who also happens to be an Ojibwe elder on the neighboring Native American reservation.
If you click on the Flikr link on my front page you will find a bunch of family photos, including their graduation and wedding.
And speaking of stuff, here’s a picture that I like a lot. It’s one of my favorites … Waverly Beach, Wisconsin. 
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Hi Sue! Thanks for the nice message you left on my blog
In health,
Abby
Your son is adorably cute:) And I’m guessing very tall?
Waverly Beach? OMG I live in Neenah! Hi, my name is Nicole. Nice to meet you!
Same here! I love Wisconsin!
Your son is a handsome boy. I guess I should say man.
I take prednisone for severe arthritis in my knees and back. I’m down to 10 MG and my orthopedist wants me down to 7 1/2. I tried getting off it completely but couldn’t walk at all. I hate taking it. My question is: I read somewhere on your blog about steroid hot flashes. Did you mean from prednisone? I ask because I never got hot flashes from menopause which I am through with but for the last year I have been getting mild hot flashes and that’s just about when I started taking prednisone. I wonder if there is a connection? What do you think?
I think there’s a big connection between prednisone and hot flashes! If you’re at 10 mg prednisone congratulations! From what I’ve read about prednisone (and believe me, I’ve read a lot), it basically takes over the work of the adrenal gland, which stops producing adrenaline naturally when we are on anything over 7.5 mg of prednisone daily. That’s probably why your doc wants you to eventually wean down to that magic number. Of course, weaning down steroids is tricky business and should be done very slowly. I learned that the hard way, throwing myself into bit trouble when I decided to taper by 10 or even 5 mg a week!
I hate taking it too. But like you, I want to walk without pain.
I have been taking 7.5 mg prednisone for the past couple of weeks and have noticed no difference so I will stay there. Thanks for the info. I think it’s best if my adrenal glands are working.
You have a lovely blog. I hope you have more good days than bad. Thank you for visiting my wee blog and hope to see you there again soon! ~S Le~