Posts Tagged ‘prednisone’

Stopping Steroids … Finally

For the past 10 years or so, I’ve been on prednisone.  Most people that have autoimmune disease wind up taking steroids.  The lucky ones can be on them for short periods of time.  The not-so-lucky … like me … require high doses for long periods of time to keep their immune system in check.  Sometimes, [...]

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To Do List – 2010

I’ve been searching for a topic to write about when I ran across a great post from Organised Chaos, who borrowed her idea from Kelly.  I’m passing it on to this side of the hemisphere/blogosphere and heaven only knows where it will go from here.  Feel free to write your own list (or not) and [...]

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Safe Harbour

When you live with an autoimmune disease like lupus, your overall health and well-being is usually in an ongoing state of flux.  I don’t expect to feel crummy when I wake up in the morning.  I never take for granted the days without complications or reminders of my limitations.   Some days, however, I wish there [...]

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30 Things About My Invisible Illness You May Not Know

I’m posting this Meme in support of  National Invisible Chronic Illness Awareness Week. 1.  The illness I live with is: Systemic Lupus.  I also have Sjogren’s Syndrome, autoimmune hypothyroidism, and fibromyalgia. 2.  The year I was diagnosed was: 1992. 3.  I had symptoms since: I was 9 years old.  Nobody knew what was wrong with [...]

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World Lupus Day

May is Lupus Awareness Month.  May 10 is World Lupus Day. A few days ago, I started experiencing the all-too-familiar signs of a lupus flare ramping up.  My joints started aching, and I started having hives around my hairline and neck.  Sure enough, I woke up with my skin feeling like it was sunburned.  When [...]

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Letting Go

I was blessed this past Sunday with the ability to sing for Mass at my church.  Music and singing is a big part of my life.  I started playing guitar and singing as a  teenager and over time, music became a strong avocation.  I’ve been singing ever since. Having a little bit of talent does [...]

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