For the past 10 years or so, I’ve been on prednisone. Most people that have autoimmune disease wind up taking steroids. The lucky ones can be on them for short periods of time. The not-so-lucky … like me … require high doses for long periods of time to keep their immune system in check. Sometimes, [...]
Posts Tagged ‘medication’
9 May
World Lupus Day
May is Lupus Awareness Month. May 10 is World Lupus Day. A few days ago, I started experiencing the all-too-familiar signs of a lupus flare ramping up. My joints started aching, and I started having hives around my hairline and neck. Sure enough, I woke up with my skin feeling like it was sunburned. When [...]
1 Mar
Lupus Warrior
I’ve been preparing for a battle. And I’m now ready to charge full speed into the messy underbelly of the healthcare industry. I haven’t posted much this month but I’ve been very busy dealing with new health issues. I’m in the process of writing directly to my insurance carrier, requesting an appeal of their decision [...]
14 Jan
The January Funk
Last weekend I tossed a few things in a suitcase and drove the 93 mile trek to spend the weekend with my sister. I could feel a January Funk coming on and wanted to shake it off. My choices were to just give in and let it happen or DO SOMETHING before I morph [...]
7 Sep
Pick Your Poison
This evening I filled my pill containers with a week’s worth of medication I take for lupus. I’ve been doing this every week of every year for about ten years. That’s a lot of pills. And I’m not counting the topical creams and other potions. If you have lupus you will take medication. It’s a [...]
27 Aug
Hospital Antics
Is it too much to ask for a little diversion when undergoing a 6-hour infusion in the hospital? Next Thursday I’ll have my first IVIG infusion. Need get to the oncology/hematology department at the butt crack of dawn. Hospital instructions included a veritable cornucopia of random advice: bring a blanket/or jacket in case I [...]
you get to rant