Good things never last forever. And bad things come and go too. I’ve had a steady uneventful four months of relatively good health in the lupus department. So it shouldn’t come as a shock to me when I see the obvious signs of a lupus flare starting to circle back again. First it was about [...]
Posts Tagged ‘infusion’
26 Oct
Safe Harbour
When you live with an autoimmune disease like lupus, your overall health and well-being is usually in an ongoing state of flux. I don’t expect to feel crummy when I wake up in the morning. I never take for granted the days without complications or reminders of my limitations. Some days, however, I wish there [...]
4 Aug
So Here’s The Thing …
Where have I been for the last month? Did not fall off a cliff. Was not deported. There is a story to tell and on the Lame Story Thermometer it’s quite impressive. So here’s the thing ….. I could tell you I’ve been in mourning since Michael Jackson died. Well, I did watch the memorial [...]
15 Jun
A Small Miracle
At long last, my insurance carrier approved my IVIG treatments for lupus, retroactive from September last year through June 2010. I feel like I won the lottery … or at the very least, was granted a small miracle. The road to these much-needed and long-overdue infusions has been long and crazy! Last month I was [...]
9 May
World Lupus Day
May is Lupus Awareness Month. May 10 is World Lupus Day. A few days ago, I started experiencing the all-too-familiar signs of a lupus flare ramping up. My joints started aching, and I started having hives around my hairline and neck. Sure enough, I woke up with my skin feeling like it was sunburned. When [...]
28 Sep
That Wasn’t So Scary
I’ve completed two IVIG infusions. On my first visit to St. Louis University’s Cancer Center, I was pretty scared but did my best to not freak out. Initially the process was surreal, driving in the rain during rush hour, trying to find the dang place, getting lost inside the hospital … my feet felt like [...]
you get to rant